FOI reference: FOI-2026-3694
You asked
This FOI is regarding the support of people with breast cancer in primary care, specifically the incidence, mortality and survival of people with breast cancer in the UK.
I have been able to access some data from the National Disease Registration Service (NDRS). I am unable to access however, any data from the National Data Library. It appears there is an open government licence on the data for this site, but no link to the dataset.
Are you able to confirm if there is any more recent data in the NDL than that on the NDRS website which was from February 2022. If so, is it possible to have a summary of breast cancer incidence, mortality and survival that I could reference as part of my paper?
We said
Thank you for your request.
We hold Cancer registration data for years 1995 to 2017, but we are no longer responsible for the production of statistics pertaining to cancer incidence or survival in the period specified. We hold data on deaths including where the underlying cause of death is breast Cancer for years 1959 to 2025 for England and Wales.
NHS England are responsible for publishing official statistics pertaining to England, their latest publication provides cancer incidence statistics up to the year 2023 and cancer survival statistics followed up to 2023.
Public Health Scotland are responsible for publishing official statistics for Scotland, and their latest publication provides cancer incidence estimates up to December 2024 and cancer survival statistics followed up to 2023.
Public Health Wales are responsible for publishing official statistics pertaining to Wales and their latest statistics relating to cancer incidence in Wales provides data up to 2022. Their cancer survival in Wales publication provides cancer survival up to 2022.
The Northern Ireland Cancer Registry are responsible for publishing official statistics on cancer incidence and survival in Northern Ireland. Their latest publication covers the years 1993 to 2022.
Information on deaths due to breast cancer is available from our explorable dataset available on our NOMIS webservice .
Instructions for use of this service:
Select geography (England and Wales, regional, or by local authority)
Select age (all ages, or five-year age bands)
Select gender (total, or male or female)
Select rates (all births, rates, or percentage of population, for example)
Select the ICD10 code for the underlying cause of death (C50)
Select format (Excel or CSV, for example)
For further information on cancer mortality please contact health.data@ons.gov.uk